|
 |
|
|
 |
|
|
|
|
Our Mission is to provide the national and international Huntington's disease community with direct links to our
HD researchers, HD foundations, HD clinics, and HD clinical trials and studies, so that private donations may
be facilitated. These wonderful resources show incredible promise in finding viable treatments or the cure for
Huntington’s disease in addition to providing exemplary care for our JH'Dears and H'Dears. Here you can learn
more about the Huntington Study Group (HSG) or locate and participate in a clinical trial or study in your area.
Help4HD radio show links are provided so that you may listen and learn more about what they are doing
to help all of us in the HD community.
Our scientific researchers are working day and night to find viable treatments or the cure for Huntington's disease,
but funding has become more challenging. Our researchers need to continue their work from the bench to the
bedside, without interruption or delay. Our HD care facilities need much more support in order to continue
providing excellent care to those who are suffering from Huntington's disease.
Researchers work from grants, philanthropic and private donations. Many times research money dries up and
their research ends in the valley of death (VOD), where promising research dies due to lack of funding. The Food
and Drug Administration (FDA) may mandate additional preliminary testing before they will allow a clinical trial to
begin, which usually falls outside a specified grant allocation. Private donations will make a huge difference to
bridge the gap and pay for these additional mandates. Without private funding, many trials and studies will not
take place.
Research4HD.org is designed to assist the entire community with direct links to these vital resources who need
fostering so that crucial research does not get shelved and precious time is not wasted. Time is of the essence,
and for many who suffer from Huntington's disease, time is running out.
We need to eradicate HD!
Thank you for visiting - Research4HD.org
MELISSA BILIARDI
President/CEO
Help 4 HD International
Melissa@Research4HD.org
(805) 441-5618
|
|
